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SJS Patient Resources

Stevens Johnson Syndrome Permanent Side Effects

You are victim of Stevens Johnson syndrome/ Lyell syndrome (toxic epidermal necrolysis), and you wonder if it is possible to heal.>

Know that the medical profession often remains mute regarding that question. In fact, the long term consequences Stevens Johnson syndrome / Lyell syndrome can be very serious. Concerning internal organs, consequence of stevens johnsons syndrome and lyell syndrome could be a serious damage of liver.

According to the thesis of D Popinet about lyell syndrome (toxic epidermal necrolysis)(1995 university of medecine of Clermont ferrand), it appears that the pancreas can also suffer and presents some after math.

Below is a succinct presentation of the after-effects of Stevens Johnson syndrome /Lyell syndrome (toxic epidermal necrolysis) that we noticed.

Ophtalmologic after-effects of stevens johnson syndrome and lyell syndrome (toxic epidermal necrolysis) Often the most serious, leading to a risk of blindness, or even total blindness. Usually, very painful eyes, big photosensitivity (possible relief with scleral lens), keratitis, cornea ulcer, neo vascularization of the cornea (veil) ocular drought, lashes that sprout in an anarchical way.

You can visit doctor scheffer tseng's (Miami) web site. www.ocularsurface.com clinical services Photos of ophtalmological after-effects caused by stevens johnson syndrome and lyell syndrome.

Cutaneous after-effects of stevens johnson syndrome and lyell syndrome (toxic epidermal necrolysis) Cutaneous attacks can be harsh, thereafter a great sun sentitivity, sometimes requiring the use of cream daily.

For the victims of African origin, the stevens johnson syndrome / toxic epidermal necrolysis sometimes can let white stains on the skin.

They can be serious at dental level : loss of teeth (even all teeth) repeated dental cavities, requiring many dental cares, or insertion of crowns, baring of the teeth, parodontitis. Sometimes big sensitivity of the gums (bleekings).

Pulmonary after-effects of stevens johnson syndrome and lyell syndrome (toxic epidermal necrolysis) Dilatation of bronchi, respiratory allergy, runny nose, bronchitis.

ENT after-effects of stevens johnson syndrome and toxic epidermal necrolysis (lyell syndrome) Formation of corks in the auditory meatus, requiring regular visits to specialist to remove these corks.

Balance troubles. Digestive after-effects of stevens johnson syndrome and toxic epidermal necrolysis (lyell syndrome) Indigestion, hunger pangs.

Fatigue Some victims of Stevens johnson syndrome and toxic epidermal necrolysis (lyell syndrome) complain about phases of intense fatigue, or even great weariness.

Cardiac unrests Tachychardia. Blood unrests Leukopenia, Thrombopenia. Body temperature Case in pediatric age, who suffered from repetitive fevers several months after his stevens johnson syndrome , and also falls of temperature until 34,2C°

STERILITY, MISCARRIAGES Case of a victim of stevens johnson syndrome /lyell syndrome (toxic epidermal necrolysis) in her adolescence, that probably leads to her infertility.

Case of a young woman, victim of stevens johnson syndrome /leyll syndrome (toxic epidermal necrolysis) when she was 6 years old, who had repeated miscarriages.

DIABETES Eventual starting, aggravation of an existing diabetes.

SLEEP UNRESTS Insomnia,or very important need to sleep, one or the other alternatively. Sleep apnea MUSCULAR PAINS Some victims of stevens johnson syndrome and lyell syndrome complain about muscular pains, and fragility to the muscular level.

JOINT PAINS Several victims of stevens johnson syndrome / lyell syndrome complain of joint pains

HEADACHES Some victims of stevens johnson syndrome / lyell syndrome complain of headaches, cephalalgy.

DEPRESSION Some victims of stevens johnson syndrome and lyell syndrome often suffer from depression.

NAILS Loss of the nails (they grow again in general, but not always) HAIR Sometimes total loss of hair (it grows again in most of cases)

 

 

Stevens Johnson Syndrome

Dr. Christopher Miller reviews the diagnosis and management of patients who have Stevens ...

www.thedoctorsvideos.com/.../Stevens-Johnson-Syndrome-Ch.../p>

"Pharmacoepidemiology and drug safety." Pharmacoepidemiol Drug Saf. 2012 Apr 27. doi: 10.1002/pds.3276. [Epub ahead of print] Validation of a claims-based diagnostic code for Stevens-Johnson syndrome in a commercially insured population. Eisenberg DF, Daniel GW, Jones JK, Goehring EL Jr, Wahl PM, Winters P, Levin J, Bohn RLSource

HealthCore, Inc., Wilmington, DE, 19801, USA.

Abstract PURPOSE:

To validate the administrative claims identification of a diagnosis of Stevens-Johnson syndrome (SJS) using medical records as the "gold standard" in a large, commercially insured US population.

METHODS:

Patients with >1 medical claim with the International Classification of Diseases, Ninth Revision, Clinical Modification code 695.1x between 1 July 2000 and 31 May 2007 were queried in the HealthCore Integrated Research Database(SM) , which contains administrative claims data for 14 commercial health insurance plans.

Trained nurses and pharmacists abstracted pertinent information from the identified patients' medical records, which were then reviewed by two independent dermatologists to identify criteria to determine SJS diagnosis.

Positive predictive values (PPVs) based on the claims and chart data were computed for all the cases.

RESULTS:

Medical charts for 200 claims-identified cases, with the International Classification of Diseases, Ninth Revision, Clinical Modification code 695.1x, were abstracted and reviewed by the dermatologists.

A total of five cases (PPV = 2.50%, 95%CI = 0.8%-5.7%) were determined to be SJS with clinical certainty.

PPVs varied with data stratification: PPV for inpatient claims only (PPV = 2.00%, 95%CI = 0.24%-7.04%), inpatient claims with 695.1x in first diagnosis field (PPV = 4.11%, 95%CI = 0.86%-11.54%), and final decisions of either clinical certainty or probable cases of SJS (PPV = 6.00%, 95%CI = 3.14%-10.25%).